Sunday, 26 June 2011

37 weeks!!

Jasmine is totally and utterly magnificent as usual!!
Kai came in to see Jazzie today, he was so great, he was taking lots of photos and videos of her!!  And it turns out hes actually very good at taking photos!
When we got there, she was crying and grumping 'cos she was hungry, and also had a belly full of wind.  As soon as I sat her up in the isolette she burped.

She had a weigh- 1776g!!!  Then had a bath and really enjoyed it!  Got her dried and dressed, had a cuddle....then Kai had a cuddle.  He was very, very chuffed to bethe first of the siblings to have a cudlle with her!!!
Shes doing really well on the low flow, and sats around 28-30% on CPAP.
Still tolerating 10ml and 11ml feeds alternating.  Tummy girth 30cm.

Leanne did her hand and foot prints again, they are sooo big!!!!  Its awesome to see how much shes grown!

10pm- she'd gone back onto CPAP at 8pm, currently on 28% o2. I'll have to buy her some new clothes 'cos soon she'll be in her big girl open cot!!!  As soon as she hits 1800g!!!

37+1
Jazz amazes me, she's hit the ground running now!!
Arvand came to see me, Etta and some other doctors are taking over her carenow.  He said she'll begin upgrading to 2 hrly feeds, and when shes tolerating that she'll start low flow 8 hrs at a time!!!
Had my beautiful cuddle, she had a little play at the breast but mostly wanted to sleep.  Held her for 2 and a half hours, wish it couldve gone longer.

This afternoon, the kids and I went out to buy outfits for Jazz, she needs to be nice and warm when she's moved into the open cot which will be very soon!

She had Yvonne looking after her tonight.  8pm update- Doing great, 28% o2 and just had a 15ml feed, she'd be having another 5ml soon and by 1pm she would be on 2 hrly feeds like a big girl!!  So far she was tolerating the new feeding regime.

37+2
Oh my god this child is amazing!!  never ceases to astound me!  Mum and I got in at 9.30am, Leah had her and said she's now on high flow and being cycled onto low flow!!!  The magic of steroids in action!  She's doing so well that she's now offivially a part of the red team- special care!!!
They were going to move her to Bay 6, which is usually quarantine, but is currently Bay 4's spill over, but got really busy with admissions.
Nanny got to put her on the scales and helped give her a bath, Jazz loves the bath now.

Physio came to see her as well and she'll have a physio assessment soon, but looks good so far.  Had my usual cuddle, still the highlight of my day!!
Shes still tolerating 2 hrly feeds.

8pm- Jo said shes a star....I know!!! 
Having her vaccinations right now.  Had panadol before and will continue having it over night.  Her o2 went up to 40% but they said it was a mechanical error something to do with the humidity, it has since come down to 35%.
10.30pm She's been moved into her big girl cot!!  and shes doing fine!  33-36% o2

37+3
Rang at 8am- Jo had her again and said she's still a star!!  Had one big braddy and 1 desat an hour after her vaccinations, but doing great otherwise!
Maintaining her temperature in the open cot so far, o2 28%!!
She didnt go on low flow today, Jo thought she should have a bit of a rest after such a big couple of days.  David has her for the rest of the week, he thinks she's doing extremely well!  Everyone's very inpressed with her!

Jo thinks she'll probably be home in 6-8 weeks, that'll be late July-early August!!  So not long after her due date!  After seeing so many micros staying in MUCH longer than their due dates, this is amazing to me!!
She's looking great in her big girl cot.  Had to get mum to get some more bankets.
Bec, Ava and Bec's mum came to visit and couldnt believe how much she's grown!!  Ava was an absolute champion and got home before her due date!!  What a star!!
Ava has grown heaps and she's just gorgeous!

Jo thinks Jazz may have reflux which is really common in prems, but thinks its fairly mild.  Jazz will start having an actual breastfeed tomorrow!!!!!  Then in the next week or 2 it'll go to 2 a day!  She's also going to go up to 3 hrly feeds soon!

8pm- Best behaved!  No desats!!  30% o2

37+4
Jazz had her first real breastfeed today!!!
She was crying for her feed, it was the first proper cry I've heard from her, normally its little grizzles, this was a real cry, but sounded like she was crying "meow", haha

She latched onto the left breast with no worries and pigged out!!  A little trouble on the right, but we'll get it sorted.  She got two let downs and was very 'drunk' and passed out!  Slept 'til her next feed so there was no wondering if she'd got enough!
We are able to breastfeed once a day now!

Temperature was a little low after her feed so no weigh today.  Had blood gas done-51, what a legend!!
Doing great on high flow, still getting a break from low flow due to immunisations, having the RSV shot tonight or tomorrow, so she'll probably not go back onto low flow for another day yet.

Natalie will be coming to talk to me tomorrow about what will be happening now that shes in special care, and what happens when we go home!!   Wow!  Getting exciting now!!  She'll be home soon!
Cant wait to get home.  NBS is a very sad place sometimes.  One of Jazzies Bay 5 roomies passed last night, she was 6 months old and had been almost term when she was born, sadly she had an incurable degenerative lung problem.  She was so chubby and beautiful and had the most gorgeous eyelashes.  I had bumped into her mum in the cafe and told her how beautiful Maria was.....she responded by breaking down and saying Maria wasnt coming home, I cried and said im so sorry.....what do you say???  Its just heartbreaking.    Too many beautiful little lives lost.  I dont know how the nurses cope, they are amazing people to do what they do.

Jazz was moved to bay 6 this afternoon because Bay 5 is specifically for CPAP babies and they needed Jazzies spot, but she wont go to bay 4 'til shes off high flow.
She was unsettled at first with her new room, but settled fairly quickly and is great!  o2 isat 30% and she had a huge poo and wee'd all over her clothes.

37+5
8am- Claire said she's been behaving all night, o2 30%, sats 95-96

When I got in, the doctors thought she might be unwell.  They were worried once again about her girth, which had gone up to 33.5cm.
She was nil by mouth for 4 hrs, abdominal x-ray showed a lot of gas and a bit of impacted poo.  Shehad a suppository and was allowed to have a breast feed.

She went nuts on the breast!  I was overdue to express and told them she might get a lot, she got 2 big let downs and drank really well, although at one stage she did forget to breahe!!
Haemoglobin is a bit low, David is considering whether to give her a transfusion.  She still hadnt had a poo by the time I left at 3.30pm.  She seems to like to just hang on to those suppositories nowadays!!
They are weaning her off high flow now.  Her flow reduced from 6 to 5 and then down to 4.
Had her weigh today - 18549g.  She had her RSV shot today, began crying 'til she got her beloved sucrose!!

7pm- Fausta has her tonight, she had an 8ml aspirate at 5pm- they think she mustve gotten a ripper of a breast feed!!!
11.40pm- 1 desat, not unusual after an immunisation.  Straining and squirming, but no poo yet.  Temp is fine, o2 is 30%.  Haemoglobin is still low but they havent decided on the top up yet.

Had 2 hrs low flow today with no dramas, and only had 4 desats for the whole day!!!  Wow!!!

37+6
7.30am-She has Mel.  Being good, although she was a bit naughty at 5am with 1 braddy and 1 desat.  Temp fine.  HUGE poo, lost 2.5cm girth!!
Had a lovely breast feed at 11am.  She just didt want to stop!  Every time I sat her up for a burp she just went nuts for more!!!  o2 28-30% but was on 24% part of the day.

Came back at 7pm for a second feed ( she's allowed 2 a day now!)  She was so tired, and just kept grinning with the booby in her mouth!!!! Starting tomorrow it'll be 9am and 3pm breast feeds!!

No comments:

Post a Comment