The first month home

5th August 2009
Corrected age- 1 month and 1 day

The day after Jazz came home she was featured in the Herald sun newspaper, the photos were great and even though I lived the story, it still made me weepy!!  (For many months after that story we had people in the street recognise Jazz and I,  and say how amazed they were by her!!!)

Its been very hectic since Jazz came home!!  The hospital in the home (hith) nurses came every day in the first week to make sure she was doing ok.
The o2 has been pretty easy to get used to, although we have had some toddlers turn it up and down on her!!!  The portable tank is simple enough, but it can be a pain to cart around, especially when its full and a bit heavy!!!  But its not too much of a big deal.  The concentrator is very noisy, but I've already acclimatised to it and rarely hear it now!  And I dont need to use the heater because the concentrator puts out so much heat!!!!  Its very expensive to run, but thankfully we get a life support concession from the power copany!!!

At her last weigh, she was 2580g.
The Tuesday after she camehome, she had her eye exam with Marcell in Cranbourne.  She got the all clear, no ROP!!!!  Shes incredible!  Marcell thought she was amazing too!  She has to go back in 6 months to check out the cataract again, but hes still sure its not going to be a problem.
Had the hith review on the Friday, the week after she came home.  Arvind was so impressed by her, he said its great to see a little one do so well!!  She was discharged from hith and has her one and only PAC (post acute care) visit tomorrow.
She had her respiratory appointment on the 3rd, she sees Professor Nick Freezer, hes really happy with her.  He said be on o2 for 4-6 months.  She has her next appointment and lab test (oximetry) in 4 weeks.

She was very unsettled the first week home, extremely colicky, poor thing was struggling to fart but laying on dads big belly helped with that!  Shes been a little more settled the last few days, and wants to eat like a piggy!!!  She has her required amount, then an hour or two later wants a booby (trying to see if I can get her on the breast) or bottle top up!!  Shes huge now I think shes put on lots of weight!  cant wait for her to be weighed tomorrow. 
She smiles at us now, really real smiles that cannot be mistaken for wind!!!!
She astounded the hith nurse, I put her on her tummy on the floor and she almost rolls!!  When shes on her back she hits and grabs her dangly toys, particularly her lion, she loves him!!
The kids have been wonderful with her, they absolutely adore her and, true to her word, Paige even helps change pooey nappies!!