April 2010- the ups and downs continue part 2

14/4
Jazz had a great night.  When Marc came by he was astounded and said we could go home!!
He said she has incredible resilience!!

16/4
Jazz's cough sounds like its freshening again and its been a HUGE struggle to get the bottle into her!
She had speech therapy today and did brilliantly, the speech therapist said to keep doing what I've been doing, which is giving her little lumps from time to time and to increase the lumpiness a bit.  With miniscule lumps she gags and with bigger lumps she actually vomits.

17/4
Still fighting the bottles.  The kids and I went to the market, and for a picnic today, they had a ball!!  Jazzies cough freshened up again late afternoon so we came home.  They said it was the best day they'd had in a long time!

18/4
Jazz had coughing fits throughout the night, but not bad enough to go to Monash.
She took 90ml in a bottle this morning, thats promising

19/4
Jazz had her neurology appointment today  Jazz does have mild C.P.  The neurologist said it will either be diplegic (both legs) or left hemiplegic.  The eye rolling siezures are related to the scarring on the brain that has caused the CP.  He said she have a limp, or could even have no symptoms but we do need to keep an eye on things.  According to Tiff the physio, we will know more by the end of the year.  This year the myelin gets laid down over the nerve endings which is why things are showing up now.  As the process goes on, it'll either get worse or stay the same.  She wont lose the abilities she has though.  The neurologist wants me to catch the eye roll clusters on video.

20/4
Saw the dietician today.  She said Failure to thrive, I say insanely active child!!!  Jazz is on the 10th centile of the premmie chartfor corrected age for length, but no where near the chart for weight.
Have to add an extra scoop of formula, and add polyjoule to her food and try a high energy diet for a while.  We'll see her again in June.

26/4
Jazz looks like she's putting on weight.
Still having the coughing fits off and on but hasnt needed to go to hospital.  We went to rachels birthday party on the 24th, Jazz was really good!! 
On the 25th, Jazz had a few coughing fits that caused her to throw up everywhere!!