December and January 2009

Jazz saw the reespiratory specialist the monday that she was discharged from hospital, he's happy with her but she wont be coming off o2.
Saw the physio on the 2nd December, they had a fisher price piggy bank and she went off!!!  Laughing big hearty guffaws!!  It was hilarious and she had everyone in stitches.


Still unable to keep the prongs up her nose, she pulls the tapes off as well!!

3/1/2010

Its been a hectic few weeks, getting Christmas happening and everything.  Jazz had another download on 29/12 and did much better!  Only one desat at 3am due to moving.  Still waiting to hear if it was good enough to get her off!
She only put on 40g last week, shes 5780g.
Eating solids pretty well, but since she got sick its a nightmare to get the bottle into her.  Ive never had a baby so difficult to feed!!!  But apart from that, Ive never had a happier baby!!  And she never (or incredibly rarely) cries!!
She's getting a bit better at sitting up, but still cant do it on her own, thats ok shes only 6 months corrected.
Still cant keep the bloody cannula in her nose!!!  She tears the tapes off, sticks the prongs in her mouth, sometimes dragging it and pulling her eyes down with it!  Looks awful!!!
She couldnt see what all the fuss was about with Christmas, but did enjoy gnawing a turkey bone.

12/1

Still hectic!!
Finally got the call from Nick yesterday afternoon- Jazz did greatband only has o2 over night!!!!  Woohoo!!!
She was sooooo happy to have that stinkin' cannula out, but putting it back in at night is a shocker!!
Its so good to see her beaautiful little face with no tapes!!  Its amazing how different she looks!!  I finally understand why no one recognises superman!

She's still not drinking well 60-90 ml, 4 x daily.  But eating solids ok.  She'll be weighed Thursday, that should be interesting. 

2 nights ago Jazz said 'mum'!!

Found out yesterday that one of Jazzies little room mates passed away from liver failure, and her other little mate is very sick with her liver and most likely needs a transplant.  This is the worst part about having a prem.  You enter a whole new world where your little sheltered life completely comes unstuck!  I had been so fortunate all these years to not really know anyone who lost a child, its just so heartbreaking to watch so many precious lives pass so young.  I remember the names of every one of the bubs that passed while Jazz was there (and in the time since)  and I dont think I'll forget them.  Even when you dont really know them well, they have such a profound impact on your life. 


17/1

Jazz only put on 180g in 2 weeks, but Nick said 90-100g a week is ok because prems dont put on weight as well as full termers. 
Her bottle drinking has become an absolute nightmare! For almost a week now Ive been struggling to get her to drink at all!!   She'll have her morning bottle ok....ish, 90ml.
Yesterday I found the best way to get it into her was to feed her when she was just asleep.  Trying to give her liquidy solids to try and get the fluid into her. Its bloody hard work!!
Nick Freezer is still really happy with her, she can stay off o2 during the day.  After her next appointment on 27/2 she'll have another download, and Nick thinks she'll probably come off night time o2 then also!!!!

Despite being naughty with her feeds, she's still doing great; happy, active- travels all over the place on her back!!

24/1
Still not drinking well.  She'll still drink the morning bottle ok, but for the rest I have to get her to just asleep before she'll drink some!  It has to be timed perfectly though, too asleep and she cant drink, not asleep enough and she yells and tries to suffocate herself in my armpit!!!

2 days ago she started saying bubububududududu
eating solids ok, seems to really enjoy her solids.  But shes funny with them, they must be completely smooth, even the most minute 'lump' and she gags!!!