Sunday, 3 July 2011

April 2010- and the ups and downs continue part 1

1/4
Jazz had a bad night, lots of coughing fits, desatting to 80.
This morning she had 2 massive coughing fits with desats to the 60's and increased o2.
David Armstrong said when shes on 1/4 of a litre of o2, no suctions and no desats she can come home.  After 5 days on antibiotics, the pertussis bacteria is dead so she wont be contagious, but the damage is done and she could have a very nasty cough for up to 3 months.  She could even end up back in hospital with it!

Easter Bunny came around this morning, he wasnt allowed in Jasmine's room, but Jazz got close to the glass, she loved him!  He gave her a cadbury soft toy Easter bunny, she loved it too!!!  She was also given a lovely quilt and knitted teddy that had been made by volunteers, its her third gorgeous quilt from Monash.

2/4
Jazz had a better night, a couple of coughing fits but o2 stayed the same and no desats.  Saw David today and he said we can go home!!!! On o2 of course.   Had to wait all day for the meds, didnt leave until 2.30pm!!
So glad to be home with the kids!!!  Jazz was rapt to see them and they were so excited to see us!

3/4
The kids love having Jazzie home.  Shes having a ball, cruising around everywhere.  Shes still not drinking well, but not toooo bad.
The carelink nurse came to see how she was going, she said Jazz is doing very well and one of them will be back to see her again next week.
Jazz is still doing the eye rolling thing and also arching, but predominately the eye rolls. 

4/4- Easter Sunday

Jazz had a lovely day at my brothers , loved her eggs, loved playing with all the kids....so glad we got to be home for Easter....didnt want to do Easter again in hospital!!

6/4
Saw the carelink nurse.  She said Jazz really should be seeing a dietician as you can see every rib and bone and vertebrae in her body...she said Jazz looks like a ridge back!!  The nurse spun out because shes 13 months old and only 6 kilos, but shes really 9 months old.

10/4
Jazz got sick again on the 7th, she had a roaring temperature, as it was late we gave her panadol and kept an eye on her.  On the 8th I took her to the GP, her temp was 40 so I was told to take her to Monash.  They said if she drank a bottle and stayed still long enough to check that her sats were ok we could go home......took a couple of hours!!!!  Temp was gone on the 9th, but shes still a bit under the weather- hard to know if shes coughing from the whooping cough or something else.

She started waving hello and goodbye today.

11/4
Jazz has been having coughing fits progressively getting worse.  This afternoon she was having her lunch (around 2pm, her times are off cos shes been off her bottles again since yesterday) she had a massive coughing fit and went very blue.  I turned her o2 up a bit and patted her back lots, she started breathing again, she was coughing so much she just couldnt get a breath!! I thought she'd inhaled some food from coughing and choked
 Shes been having a few coughing fits since then, turning red, no more blue episodes.
Watching her very carefully, I dont want to take her out in this cold weather to wait in a germy hospital if I dont have to!!

Jazz got progressively worse, no more blue spells but the nasty coughing fits and turning red every half hour.

I went to put her in the car to go to Monash and she had another nasty coughing fit.  I got really scared, what if she had one of the blue ones while I was driving on my own in the dark and cold.......
So I called the ambulance.  They checked her out and took us straight to Monash.

12/4
Jazz wasnt having a huge amount of coughing fits by the time we got to Monash, but finally had a really bad one in front of the doctor, they decided to admit her, its the whooping cough.
We finally got up to the ward at 5.30am....and I got woken at 7am
Jazz slept a lot today and Marc said she could possibly stay in for up to 12 days!!

13/4
Jazz had a much better night.  When Marc saw her this morning he was amazed at the turn around and said she wouldnt be in for 12 days after all!! Shes incredible!

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